We started with a wonderful holiday in Disneyland Paris, have celebrated a year out of treatment, seen Adi start reception and settle in well, steer a pony by herself, moved from 3 monthly scans to 4 monthly ones (woohoo!) and finished the year off with a party at No. 10 Downing Street!
|Meeting Samantha Cameron|
|Santa....(his reindeer were parked outside...really!)|
We attended as guests of the wish charity, Rays of Sunshine, who were also kind enough to send us to Disney. It was intimate enough to allow us to talk to other families and make new friends and for the kids not to be overwhelmed. Adi was a little bit miffed at missing her riding lesson but Asher understood the significance of going to No. 10 and meeting the Prime Minister..what with that and meeting Dick and Dom, it was lovely for him to have such a special treat.
Despite the emotional ups and downs, we feel very blessed that Adi is so well at the moment. She is funny, determined and absolutely set on enjoying her life to the full and dragging us with her. Asher is kind and gentle and very, very patient with his spirited little sister. They are our inspiration and we are so proud of them both.
|......and of course the Prime Minister!|
As we start the new year, we have a lot to look forward to. We are now starting to get on top of the housework, Dave is looking for more secure/regular employment, I have joined the gym to try and regain some semblance of fitness so I can keep up with Adi's furious energy. I am even planning to repaint the house - it is time to refresh and move forward. Every couple of weeks, life will be interrupted for a scan, assessment, meeting or check up but it is our new normal and we are grateful that is all we have to deal with, especially in light of what some families close to our hearts are dealing with right now.
We are making a start with a party for Dave's birthday on Friday and also to mark 2 1/2 years since Adi's diagnosis. We have a lot to celebrate and we are going to make the most of every opportunity. Happy New Year everyone...we hope that 2015 brings happiness, peace and many, many joyful times xxxxxx