At 2 1/2 years old, our daughter was diagnosed with medulloblastoma, an aggressive brain tumour on July 2nd 2012. It was removed four days later on July 6th and we have been through months of chemotherapy and radiotherapy. We have now finished treatment and are now settling in to our 'new normal' comprising regular, nerve-wracking MRI scans and endless check ups and therapy appointments. This is the continuing story of our journey.
Saturday, 19 April 2014
Thank you Oliver Curd!
We have just come back from a really lovely family holiday thanks to the Oliver Curd Trust.
The Oliver Curd Trust set up in January 2008 by Oliver’s parents Richard and Sarah, in memory of their son Oliver.
Oliver was diagnosed with a rare bone cancer, a Ewings Sarcoma in April 2006. He completed treatment at the Royal Marsden Hospital in May 2007, but sadly lost his long brave fight with the disease in November 2007. The objective and purpose of the charity is to provide fully equipped holiday accommodation to families supporting children and young people in the UK, suffering from childhood cancer and other life threatening illnesses.
The Trust has a couple of caravans and we enjoyed the one in Crowhurst Park, Battle. Amazingly clean, lots of space and every modcon we needed. We had complete access to the swimming pool and we made full use of that - at least once a day!! It was also a great place to go on outings too as well.
We have been hit quite badly financially with Dave having to give up his full time job and begin supply teaching which is not very secure and doesn't pay during school holidays. I had to give up a new job when Adi was diagnosed and put my teaching job on hold for a year. We count ourselves very lucky that Dave could find flexible work, even though it was a drop in income, so a family holiday is a luxury that is a bit out of our reach at the moment. If it wasn't for the Oliver Curd Trust, we wouldn't have been able to do it.
But it's not just about the money, the Trust understand that anything can happen, so there are first aid supplies to rival a GPs, the place is spotless, emergency numbers and hospital contacts are provided, indoor activities galore - so if you are too tired to go out you can just potter around indoors and, of course, if you have to cancel last minute there is no problem. It is stress-free and so very, very good to get away.
So my two little water-babies also enjoyed the park there, the fishing pond (Asher even caught a fish!) and we ventured out to the surrounding area visiting a miniature railway, a zoo and even went pony trekking. A truly lovely and much needed and valued family holiday!